Privacy Policy

Effective as of June 2026

ALIGN-T1D VALUES THE PROTECTION OF INDIVIDUAL PRIVACY AND IS COMMITTED TO THE PRIVACY OF THOSE WHO VISIT AND USE OUR WEBSITE. THIS DOCUMENT SETS FORTH THE PRIVACY POLICY (“PRIVACY POLICY”) FOR ALIGN-T1D (“WE”, “US” OR “OUR”) WEBSITE, ALIGNT1D.ORG (THE “SITE”). THIS PRIVACY POLICY GOVERNS THE MANNER IN WHICH ALIGN-T1D COLLECTS, USES, MAINTAINS, DISCLOSES, AND SECURES INFORMATION COLLECTED FROM USERS OF THE SITE, INCLUDING, BUT NOT LIMITED TO, EMAIL, TEXT, AND OTHER ELECTRONIC MESSAGES BETWEEN YOU AND THIS SITE. IT DOES NOT APPLY TO INFORMATION COLLECTED BY US OFFLINE OR THROUGH ANY OTHER MEANS. PLEASE READ THIS POLICY CAREFULLY TO UNDERSTAND OUR POLICIES AND PRACTICES REGARDING YOUR INFORMATION AND HOW WE WILL TREAT IT. IF YOU DO NOT AGREE WITH OUR POLICIES AND PRACTICES, YOUR CHOICE IS NOT TO USE OUR WEBSITE. BY ACCESSING OR USING THE SITE, YOU AGREE TO THIS PRIVACY POLICY. THIS POLICY MAY CHANGE FROM TIME TO TIME (SEE CHANGES TO OUR PRIVACY POLICY). YOUR CONTINUED USE OF THE SITE AFTER WE MAKE CHANGES IS DEEMED ACCEPTANCE OF THOSE CHANGES, SO PLEASE CHECK THE POLICY PERIODICALLY FOR UPDATES. ALIGN-T1D DOES NOT SELL DONOR INFORMATION.

I. Information Collection

A. Information You Provide Directly

We collect information about you when you visit the Site. When you register with the Site, make a donation, contact us, or otherwise interact with the Site, we may collect the following types of information:

  • Name
  • Email address
  • Postal address
  • Phone number
  • Organization or affiliation
  • Country or location
  • Credit card information (for online donations)
  • Your personal connection to type 1 diabetes (T1D)
  • Your preferences for receiving additional information, such as newsletters
  • Information contained in your message or inquiry

We only collect information reasonably necessary to respond to your request or operate the Site.

B. Information Collected Automatically

As you navigate through and interact with our Site, we may use automatic data collection technologies to collect certain information about your equipment, browsing actions, and patterns, including:

  • Details of your visits to our Site, including traffic data, location data (country, region, state, city), pages viewed, time spent on the Site, clicks, referring websites, and other usage data
  • Information about your computer and internet connection, including your IP address, internet service provider, operating system, device type, and browser type

The information we collect automatically helps us improve our Site and deliver a better, more personalized experience, including by enabling us to estimate our audience size and usage patterns, understand how our Site is being used, and improve website performance and security.

The technologies we use for this automatic data collection may include:

  • Cookies. Like most websites, ALIGN-T1D uses cookies to collect information about how you use the Site. A cookie is a small, unique text file that a website can send to your browser when you visit. Cookies allow us to provide certain conveniences, such as delivering relevant content or providing easy access. You can choose to set your web browser to turn off cookies, but if you do, you may lose certain features when navigating the Site.
  • Web Beacons. Pages of our Site and our emails may contain small electronic files known as web beacons (also referred to as clear gifs, pixel tags, or single-pixel gifs) that permit ALIGN-T1D to count users who have visited those pages or opened an email, and for other related website statistics.

C. Monitoring, Evaluation, and Program Data

ALIGN-T1D may publish monitoring, evaluation, research, impact, or program-related data on this Site. Any such data is intended to be aggregated, anonymized, or de-identified in a manner that does not identify specific individuals. This information is not collected through the Site and is not used to identify website visitors.

II. Use of Information

We may use the information we collect for the following purposes:

  • Service Functionality: To provide you with our Site and its contents and maintain its performance; to share information about ALIGN-T1D; to solicit support and facilitate participation in ALIGN-T1D programs and services; to process donations you make through the Site; to contact you regarding the Site, our services, or your account; and to respond to your questions.
  • Service Improvement: To improve and grow our services and understand how our Site is being used.
  • Personalization: To provide you with content that you find useful and relevant.
  • Communications: To send you fundraising solicitations, newsletters, and updates you have requested or consented to receive.
  • Security: To protect and secure our Site, services, assets, and network; and to detect, investigate, and prevent unauthorized use or other activities that may violate our policies or be fraudulent or illegal.
  • Legal Compliance and Safety: To comply with legal process, such as warrants, subpoenas, court orders, and lawful regulatory or law enforcement requests; to comply with applicable legal and regulatory requirements; and when we reasonably believe it is necessary to protect our property or rights or the health or safety of our employees, contractors, users, or other individuals.
  • Other Notified Purposes: For other purposes we may describe to you when you provide the information.
  • Consent: For any other purpose with your consent.

We do not sell personal information and do not use personal information for targeted advertising.

III. Disclosure of Information

We may share any of the information we collect with the following recipients:

A. Agents, Contractors, or Service Providers

ALIGN-T1D may share your information with vendors in limited circumstances to perform specific business functions on our behalf — for example, website hosting, analytics, donation processing, email marketing, and technology and security vendors. We require these parties to use your information only for the specifically intended and authorized purpose, consistent with this Privacy Policy.

B. Governmental Entities

From time to time, ALIGN-T1D may be required to provide information in response to a valid court order, subpoena, government investigation, or as otherwise required by law, or if we reasonably believe that you have committed unlawful acts or acts that may endanger the health or safety of another person or the general public. ALIGN-T1D reserves the right to report to law enforcement agencies any activities that we, in good faith, believe to be unlawful.

C. Business Transitions

In the event ALIGN-T1D goes through a business transition — such as a merger, acquisition, or transfer of assets — users’ personally identifiable information may be part of the assets transferred.

D. Enforcement of Terms

We may also disclose your personal information to enforce or apply our Terms of Use or this Privacy Policy and any other agreements with you.

IV. Security

A. Encryption

We make reasonable efforts to protect information received from users of our Site from unauthorized use or disclosure. We use standard security protocols and mechanisms for the transmission of sensitive data such as credit card information. When you enter sensitive personal information on our Site, we encrypt it using secure socket layer (SSL) technology.

B. Health Information

ALIGN-T1D is not a healthcare provider. This Site is not intended for the submission or transmission of protected health information (“PHI”) or other sensitive medical information. Unless specifically requested through a secure process, please do not submit medical records, diagnoses, treatment information, or other sensitive health information through website contact forms or general email communications.

If sensitive health information is submitted inadvertently, we may take reasonable steps to delete, redact, or otherwise limit use of that information where appropriate.

C. Additional Safeguards

ALIGN-T1D maintains reasonable physical, electronic, and procedural safeguards to protect the confidentiality and security of any personally identifiable information you disclose to us. We limit access to your personally identifiable information to those employees and contractors who need to know such information to provide services to you. However, no transmission of data over the internet is guaranteed to be completely secure. As such, ALIGN-T1D cannot ensure or warrant the security of any personally identifiable information you transmit to us.

V. External Links

Our Site may contain links or references to other parties’ websites. ALIGN-T1D is not responsible for the privacy or other practices of any such outside websites. We encourage our users to read the applicable privacy policies and terms of use of each such website before deciding to visit them.

VI. Retention

We store information about you only for as long as necessary depending on the reason for your submission, and we collect no more information about you than is reasonably necessary to provide the services for which the information is collected. We determine the retention period for information we collect based on: (1) the length of time needed to achieve the purposes for which it was collected; (2) any legal or regulatory requirements applicable to such information; (3) internal operational needs; or (4) any need for the information based on actual or anticipated litigation or investigation.

Contact form submissions are generally retained for up to one year unless a longer retention period is required by law, security needs, or legitimate organizational purposes.

VII. Children’s Privacy (COPPA)

We are committed to complying with applicable laws and requirements intended to protect children, including the Children’s Online Privacy Protection Act (COPPA). Use of the Site by anyone under the age of 13 is prohibited. Children under the age of 13 are not allowed to visit or otherwise use the Site.

If you believe a child has submitted personal information through the Site, please contact us and we will take appropriate steps to address the situation.

VIII. Communications from ALIGN-T1D

When you subscribe to our mailing list, you may receive newsletters, event announcements, fundraising communications, and other information related to our mission. From time to time, we may also send notifications about updates to our services, account information, or service-related announcements.

You may unsubscribe from marketing emails at any time by clicking the unsubscribe link in any email or by contacting us directly.

IX. International Users & Global Privacy Rights

ALIGN-T1D is a global initiative. We welcome visitors, donors, grant applicants, and partners from anywhere in the world. Information collected through this Site is processed and stored in the United States, which may have different privacy protections than those available in your country of residence. By using the Site and providing information through it, you acknowledge that your information may be transferred to and processed in the United States.

A. European Economic Area, United Kingdom, and Switzerland

If you are located in the European Economic Area (EEA), the United Kingdom (UK), or Switzerland, the General Data Protection Regulation (GDPR) or equivalent local law may apply to our processing of your personal information. This section explains how we handle your data in compliance with those requirements.

B. Legal Bases for Processing

We process your personal information under one or more of the following legal bases:

  • Consent: Where you have given us clear consent to process your personal information for a specific purpose, such as subscribing to our newsletter or making a donation.
  • Contractual necessity: Where processing is necessary to fulfill a transaction or agreement with you, such as processing a donation or responding to a grant inquiry.
  • Legitimate interests: Where processing is necessary for our legitimate interests in operating the Site, communicating about our mission, maintaining security, and improving our services — provided those interests are not overridden by your rights and interests.
  • Legal obligation: Where processing is necessary to comply with a legal obligation to which Align T1D is subject.

C. Your Rights Under GDPR and Equivalent Laws

If you are located in the EEA, UK, or Switzerland, you have the following rights with respect to your personal information:

  • Right of access: You may request a copy of the personal information we hold about you.
  • Right to rectification: You may request that we correct inaccurate or incomplete personal information.
  • Right to erasure: You may request that we delete your personal information, subject to certain exceptions.
  • Right to restriction of processing: You may request that we restrict the processing of your personal information in certain circumstances.
  • Right to data portability: Where processing is based on consent or contractual necessity, you may request a copy of your personal information in a structured, commonly used, machine-readable format.
  • Right to object: You may object to processing based on legitimate interests or for direct marketing purposes.
  • Right to withdraw consent: Where processing is based on consent, you may withdraw that consent at any time. Withdrawal does not affect the lawfulness of processing before the withdrawal.

To exercise any of these rights, please contact us using the information in Section XIV below. We will respond to your request within 30 days. We may need to verify your identity before processing your request.

D. International Data Transfers

When we transfer personal information from the EEA, UK, or Switzerland to the United States, we rely on applicable transfer mechanisms to ensure an adequate level of protection. These may include Standard Contractual Clauses approved by the European Commission or equivalent safeguards recognized under applicable law.

E. Right to Lodge a Complaint

If you are located in the EEA or UK and believe we have not handled your personal information in accordance with applicable law, you have the right to lodge a complaint with the supervisory authority in your country of residence. A list of EEA supervisory authorities is available at https://edpb.europa.eu. The UK supervisory authority is the Information Commissioner’s Office (ICO) at https://ico.org.uk.

F. Other International Visitors

Visitors from other countries with applicable privacy laws — including Canada, Australia, Brazil, and others — may have similar rights regarding their personal information. We are committed to honoring reasonable privacy requests from all visitors regardless of jurisdiction. Please contact us using the information in Section XIV to make a request or ask a question about how your information is handled.

X. Your Privacy Rights

Depending on your state of residence or applicable law, you may have the following rights:

  • Opt out of “sales” of personal information and use of personal information for “targeted advertising,” as defined by applicable privacy laws
  • Opt out of “profiling” under certain circumstances, as defined by applicable privacy laws
  • Confirm the processing of and obtain access to personal information
  • Request the specific third parties to which your personal information has been disclosed
  • Request correction of inaccurate information
  • Request deletion of personal information under certain circumstances
  • Withdraw consent where processing is based on consent

To exercise these rights, contact us using the information below. We must verify your identity before responding to your request. We may need to follow up with you to request more information to verify your identity. We will not use the information collected for verification for any purpose other than responding to your request.

Residents of certain states have the right to appeal a denial of their privacy rights request by contacting us as described in the notice of denial.

State law may allow you to authorize another individual or business (an authorized agent) to make requests on your behalf. We may have a reason under the law why we do not have to comply with your request, or why we may comply in a more limited way than anticipated. If so, we will explain that in our response.

XI. Nevada

Residents of the State of Nevada have the right to opt out of the sale of certain pieces of their information to third parties. Currently, we do not engage in “sales” of your information as that term is defined under Nevada law. If you are a Nevada resident and would like more information about our data sharing practices, please contact us.

XII. General

A. Changes to This Privacy Policy

Our Privacy Policy is intended to provide you with a safe and secure experience. We reserve the right to change, modify, add, or remove portions of this Privacy Policy at any time without prior notice, at our sole discretion. If we decide to change this Privacy Policy, we will post those changes on the Site. All changes are effective immediately upon posting. The last date on which this Privacy Policy was updated is noted at the top of this page.

B. Consent to Receive Notices Via the Site

By using the Site or submitting personally identifiable information to the Site, you are agreeing that ALIGN-T1D may deliver all privacy and related notices to you in the manner described in this Privacy Policy.

XIII. Limitation of Liability

YOU UNDERSTAND AND AGREE THAT ANY DISPUTE OVER PRIVACY IS SUBJECT TO THE TERMS AND CONDITIONS OF THIS PRIVACY POLICY AND ALIGN-T1D’S TERMS OF USE (INCLUDING ANY INDEMNIFICATION AND LIMITATIONS ON DAMAGES CONTAINED THEREIN). ALIGN-T1D’S TERMS OF USE ARE AVAILABLE AT ALIGNT1D.ORG/TERMS-OF-USE.

XIV. Contact Information

Questions or comments regarding this Privacy Policy, or requests to exercise your rights under applicable privacy laws, should be directed to:

ALIGN-T1D
Attention: Privacy Policy
1350 I Street NW, Suite 250
Washington, DC 20005
United States

Email: global@BreakthroughT1D.org

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